Today. Today. Today.

This semester I am teaching a class in self-publishing (Publish or Perish: From Monks to MOOCs). This post is the result of my most recent self-published book, The Boring Patient.

There are a lot of reasons folks self-publish a book. Some for fame, some for money, some because they have something they want to share. In most cases it is a combination of all of these. Throw in the increasing ease of doing it yourself versus the difficulty of breaking into “traditional” publishing with agents and such and you have the amazing increase in self-publishing.

I’ll be honest, when I published The Boring Patient I was interested in selling books and making money in addition to simply wanting to share my message. It was nice to have a pretty paper book to give out to friends and family, but somewhat discouraging when I didn’t sell thousands of copies (yet). Then I was invited to do an interview on the book for a locally produced public radio show on health matters.

The interview was recorded (you can hear it here) in the same hospital where I had been diagnosed with and treated for my cancer. After the interview I went up to the oncology and bone marrow transplant ward. I had spent 25 days in the transplant ward walking 31 miles 42 steps at a time. I saw a nurse who remembered me. She have me a hug, and I gave her a book. Then I went to the general oncology ward where I had spent a month when first diagnosed.

As I turned the corner, a nurse I mentioned in the book saw me. This is the passage about her from the book:

Here is one of the most poignant moments I have had in my life, and frankly, if you take nothing out of this book but the following story, I would be very happy. As the fellow lowered the bed for more leverage to push into my skeleton she requested a steel needle to bore into the crown of my pelvic bone. A nurse who had been taking care of me came to the head of the bed, and with one hand gave the fellow the steel needle, and with the other took my hand.

For the next 10 minutes that nurse asked me about my job, my kids, my wife, where I liked to travel, anything to keep me talking. Meanwhile the fellow continued to lower the bed for better leverage. She was getting direction from another doctor…it was the fellow’s first bone biopsy – great. As soon as the fellow removed the needle, the nurse let go of my hand, walked down to the lounge where my wife was losing it, and told her, “You are planning his funeral, stop it.”

Now here she was, and before I knew what to say she hugged me. She proceeded to tell me that she not only heard about my book, but had given it to the head of medicine, her fellow nurses, and even patients. She asked if I would be willing to talk to patients and possibly be involved in some staff development. To say that she made my day is an understatement. I told her I was at her disposal. If she needed me to talk to nurses or patients or doctors, I would be there. It would be a pleasure to give back.

As I was leaving the floor, she found me again and asked if I had time to talk to a patient. So I was soon sitting next to – well – me really. Me from twelve months ago. Hair gone to chemo, port connected to a pole pumping in chemo. We talked for the better part of an hour about cancer, stem cell transplants, chemo, pain, family, drugs, dying, and getting through it all. After the better part of an hour I left. What hit me at that moment was that if I didn’t sell another copy of the book, it had already accomplished more than I could have hoped.

Which brings me to this post. Turns out my story has been used in an Italian course on “The Sociology of Health” (Google translation). I wrote a brief post for the class and received these questions:

Good evening, it’s a pleasure to talk to you. I have two questions.
How has this experience of disease changed your life? And how the narratives clinics can change the concept of care of and public health? Thank you for your availability.

That is not a set of answers I can easily squeeze into a Facebook comment. So with that very long preface, here are my answers:

On the matter of what clinics can change around the concept of public health, I think the short answer is that clinics don’t make you healthy. Doctors, drugs, and treatments don’t make you healthy…they are a crucial PART of your health. So, however, are you. It takes a team of committed professionals, patients, and caregivers to get and stay healthy. All members of that team are important, all must teach and learn from each other, and the key is knowledge. That nurse holding my hand was as important to my treatment as the steel spike piercing my bone. Me taking my pills was as crucial as the doctors writing the prescription, and the pharmacist who ensured the correct dosage.

How has this experience of disease changed my life? Wow. There are the expected answers. I have come to appreciate my family and friends more. I have seen how powerful the caring and contributions of even remote acquaintances can be. Meals, sitting with me, lottery cards, Christmas caroling form library students via Facetime, all can be overwhelming. They show that people care that you are alive.

Then there is the more truthful, and frankly painfully personal answer. I don’t know yet.

It has been nearly a year since my bone marrow transplant. While I was living that year it felt like a straight path of recovery. Every day feeling better than the day before. Every day stronger. Now I can leave the hospital, now I can leave the house. Now I can travel by car, now by plane. A first clean PET scan, then another, and another. Always getting better; always moving forward. That’s the way health is supposed to work. You get sick, then you get treated, then you get better. It certainly seemed like a straight line at the time. Feeling better, then joyous, then more work and more impact; always forward. Always joyous.

But looking back on my “first year” I do not see a straight path. Yes there is the forward path of my body, but all around it is the sometimes jarring emotional swerves and bucks and skids. Always joyous? Joyous and relieved and then depressed and lost. Is it my mind, my body or the latest drug side effect. Always forward always forward until you stop and breath and want to crawl back into bed for no reason. No reason. But you try and find one to explain the fear and anxiety and depression when yesterday was joy. You take out your mental checklist: Drug change? Insomnia (again)? Bad food? Am I sick – oh God am I sick?! Where’s the thermometer. How’s my breathing and my chest? There has to be a reason, it has to be physical right? I don’t get anxious, I don’t get depressed. I’m the brave one, the strong one, the cancer is gone. I’m better…right?

Then they are there. Your wife who hugs you. Your kids joke with you. Your friends and your mother are there. And it is not so bad. Sometimes it is still bad, but you force a smile, or a joke…and then you fool yourself too. Better. Out of bed. Then joy…thank God that in all that swerving and bucking, joy comes.

Today I am better. Today I have survived a year when many would have died. Today I have a chance for joy. Today I can have the straight path…or perhaps today I will once again skid and buck. But I can do that. And maybe today as I slide and skid I can also close my eyes to just feel the rush of wind on my face. And today as I look down and see hands that every day resemble more and more those of my dead father I can remember him. And today as I try something new I can applaud myself for courage – get out of bed – get out of the house – get out of my head and do the most sincere prayer I know: today I will make the world a better place. Today I will use my gift of life to help others. Today. Today. Today.

Charlie Hebdo

This morning in a Tweet Bredebieb asked me “what should public libraries do,” about the Charlie Hebdo attack. It was frankly a bit of a humbling and scary question. After all, I am not in Paris, and I cannot claim to know everything that French libraries do now. However, it would be an obvious act of cowardice to simply claim ignorance or to respond with some high level non-answer like “help the communities have a conversation.” So I provided some ideas:

“provide a safe place to talk about the attack and the reasons for the attack and free expression. Provide access to Charlie.”

“host talks and forums on free expression and democracy. Host a human library event with different faiths.”

“host sessions with therapists and parents on how to make kids feel safe.”

“above all use this as an opportunity to be a safe place to express feelings and help your community.”

“help your community compose a narrative and then project it to the world. Is it ‘we shall overcome?’ Or ‘we stand with Charlie?’”

and ended with:

“all libraries should provide safe place to recover and the tools to turn tragedy into action and understanding.”

Still, Twitter is not exactly a place to have a deep discussion of where these ideas come from, nor truly share what I think public libraries should do. So in this post I’d like to give a deeper answer to how I feel public libraries should respond to horrific acts like the attacks on Charlie Hebdo. I’d like to present three lessons I have learned.

The first lesson is to fight violence with information and understanding. On September 11th 2001 I was the director of the ERIC Clearinghouse on Information & Technology. I came in to work that day just after the first plane had hit the World Trade Center Towers. After the second plane crashed the entire clearinghouse staff gathered in my office with a TV watching the coverage. Horrified and a bit numb, I sent everyone home. This was a time to be with family.

Over the next week we met asking exactly the same question that Bredebieb asked: “What should we do?” At the time we ran a service called AskERIC that received hundreds of virtual reference questions each day plus a well trafficked website for educators. The answer we came up with was developing InfoGuides (think WebGuides/FAQs) on the attack that we updated as more was learned as well as other related topics. We posted them on the web and sent them out in email. The overwhelmingly viewed/used resource we develop was on Islam.

What I took away from that episode was that in the wake of tragedy, people look for understanding and knowledge of the unknown. So librarians need to inform their communities through FAQs, an archive of media coverage to create an accurate memory of the event, and lots of opportunities for interaction between cultures, races, and ideas.

The next lesson I have to offer I learned from the libraries serving Ferguson Missouri during the racial unrest this past year: help the community develop their own narrative. During riots and violence in Ferguson the public libraries (Ferguson Public Library and Saint Louis Country Public Library) not only stayed open and provided a safe place for children and citizens, it offered up an alternative narrative to violence. While much of the media focused on police versus the black community, the libraries took to social media, traditional media, and even signage outside the buildings talking about Ferguson as a family.

They highlighted how with the schools closed, educators, children and parents came together to create their own ad hoc school among the stacks and shelves of the libraries. Rather than allowing their community to be solely painted as angry black mobs fighting a militarized police, the libraries showed Ferguson to be a place of multiple races coming together around children, learning, and a desire for a better future.

The libraries did not diminish the conflict, nor ignore systemic racism. Yet the libraries did not close, and did not retreat. The libraries – no, the librarians did something and showed the world that Ferguson is not so different from Syracuse, or Seattle, or communities across the country…and that like those communities, they are more than the headlines. They humanized a narrative.

What I took away from Ferguson was that libraries not only provide a constructive space; they add depth of understanding to the world. Give the community a chance to breathe, morn, reflect, and then act and speak.

My last lesson comes from the librarians of Alexandria during the Arab Spring. In the midst of riots and civil unrest the protestors protected the library. Where many government buildings were torn down and looted, the library was protected. Why? Because for the years leading up to the riots and uprising the librarians did their jobs. They become trusted resources for the community because they provided real benefit to the average citizen of Alexandria and intellectually honest services.

So the lesson? Continue to be the resource for your communities. Continue to demonstrate the values of librarianship: intellectual honesty, intellectual & physical safety; openness & transparency; and the importance of learning.

What I hope the French libraries do is what I hope I would have the courage to do in their place: be a safe place to talk about and learn about unsafe issues. Invite in all faiths to talk about how to eliminate violence, and how to respond. Provide ready access to Charlie Hebdo, and controversial materials. Talk about (host lectures, town halls, and events) around the importance of free expression in a free society.

Help to craft the community narrative and project it to the world. What is the community thinking about and learning from this tragedy? What do you do as librarians and what works. What can other librarians learn about responding to these horrible events?

I have made it my mission to advocate for librarians to be active agents of transformative social engagement. In other words, I have made it my mission to have librarians make their communities better through active service. I believe it is crucial for librarians to actively try to change the world and make it a place for fewer abominations like yesterday’s attack. Doing that is scary. We were not trained as grief counselors and no one choses easily to run towards conflict. Yet if we believe that librarians and libraries should make our communities better (more knowledgeable, more capable, more empowered) than we cannot shy away from actively helping.

To my French colleagues I ask, how can I help?

Coffee, Wifi, and the Loo: Reactions to The Sieghart Report

I don’t have time to write this post. I have grading to do, a book to write, and proposals to draft. Yet, I must comment on the Independent Library Report released today concerning UK libraries. More than that, I have to comment on how the report is part of an international movement that I feel is amazingly good, but could be utterly disastrous if done wrong.

You see the library world is embracing the community in a brand new way and embracing a much richer and expanded definition of knowledge. That is good – no that is fantastic! However the UK report could lead to a potential disastrous path: losing the identity of library for an all encompassing whatever they want mentality. So as always, I feel there are lessons here for all libraries, not just ones in the UK. Just substitute your country, county, or community in for the UK, and I think this still works.

The Sieghart Report

Before I jump into my comments on the UK report let me say that I am fully aware that doing so is an act of presumption and arrogance. While I would love to live in the UK, I don’t, so this is very much an outsider’s view. However, I believe I can bring an international context to the report from my experience in North America, and European libraries. That said, I won’t be commenting on the governance structure or role of local councils, simply because I don’t know enough. Also, these are more first impressions than in-depth commentary.

Overall I think this is a very good report, and pushes library service in the right direction. It has all the feel good rhetoric that makes librarians and library supporters cheer:

“Libraries are, let us not forget, a golden thread throughout our lives.”

“[A Library] underpins every community.”

It has the requisite amount of doom talking about declining library budgets. It notes that there have been many reports, and that action is needed. It also does a lot of talking about libraries as learning spaces. This is all great, and feels like more than rhetoric with the examples included. I can only applaud the authors for seeing the value of libraries beyond books, and seeing them as vital to community wellbeing.

It lays out an ambitious, but reasonable action plan. It calls for WiFi access, which I read as a call for bridging digital divides in communities across class and locality barriers. It even calls for librarians to be retooled and trained around community transformation (my words). Love it, love it, love it.

The report acknowledges the need for policy changes as well. It is not enough to provide well prepared librarians and Internet access, the country must work with legislative and industry initiatives to fix copyright and barriers to access. One of the reasons I like this document so much is that it sees the problems of reinvigorating public libraries as a task across society (citizens, librarians, legislators, industry) not simply asking libraries to get better on their own.

Some of the other recommendations feel like catching up, like creating a national digital library network, and building a system for spreading innovation from localities to the nation. Catching up is not meant to imply they are bad recommendations, more that we should be expecting these services. To be honest, this is where my lack of local knowledge trips me up.

The report also calls for more community involvement. I read this not only in terms of governance, but an acceptance that there will be some public libraries run by non-librarians, and they should at least have standards to be held to. Not exactly the message librarians love to hear, but a nod to reality.

Now some constructive criticism. Rolling out WiFi to every library in the nation is a good thing, no doubt. Yet this proposal is couched in the idea that libraries do this to expand access to more stuff (technical term):

“give the public access to an unprecedented range of digital content.”

So libraries are more than books, they do DVDs, they do music, they should do Internet. Sure, but be bold and follow this idea through.

The empowering effects of Internet access is not in more things to read and consume, it is in the ability to broadcast and create. If you do indeed want public libraries to:

“help rural library services utilise, unlock and build their social capital to revitalise communal facilities.”

then libraries must become publishers of their communities. Every library should be ready to house blogs, distribute podcasts, and add local knowledge and materials to the national digital network. What we don’t want to create is a public library as a poor man’s access to Netflix. What we do want to create is a UK unleashed to the world.

Throughout this report is the confusing dance and pull of centralization versus localization. This can be seen in the call for a national digital network to provide content to local libraries. If you see this as a one-way transaction (serving up national content to be consumed) then you are promoting centralization. If, on the other hand, you see this network as both providing stuff (digital stuff no less) and a platform for distributing ideas local invention and culture? Well, then you are truly talking about creating a radically better library service to citizens.

Likewise, when the report talks about national branding, and a seemingly one-size fits all retail standard, I get worried. I get very worried. This worry is based on the U.S. movement in the past decade to be more like big-box bookstores (read Borders). Throw in coffee and comfortable chairs, call everyone a customer, and BAM (technical term) – libraries are saved. Then the box stores started to close (read again Borders), and folks realized that a good public library is not a comfy retail style establishment. It is a center for the community. It looks like the community. It sees the community as the collection.

Some communities need a place. Lots of communities need services at the point of need: their homes, their work, their churches, their parks. A national library platform that enables local publishing and sharing, also allows librarians and community members to be at the place of need. Be it through a telephone, a pop-up storefront or actually sitting beside them at a table, a revitalized public library system need not look like Starbucks, but it can look a lot like a human face and a hand of support. It can look like a cell phone. It can look like an historic building given new life. It can be filled with glass and steel, or wood and plaster, so long as it is filled with people.

The report goes on to talk about e-lending. Here I have no advice to give. I, instead, have a plea to make: PLEASE FIGURE THIS OUT. Lead the world. Make policy and platforms that promote learning as well as commerce. Create a balanced system that does good and does well. UK, you can be the shining light in understanding publishing and distribution in a new age of participation. To do so, however, you have to see every single citizens as a publisher and a consumer. Every corporation has a stake and every citizen has a story.

On the question of community led libraries and volunteers, I have two comments: pushing guidelines alone won’t help (not that I am saying that is what you intend to do), and don’t try to turn everyone into a librarian. In terms of pushing documents, if you want good community libraries you need to create compelling learning opportunities and rewards for learning. Don’t simply document what you want; show the volunteers in a hands-on way what to do, and more importantly WHY they should do it. If you focus on the why’s let the community innovate the best possible how. Same with all librarians as well. Define the outcomes, deliver supporting training, and then watch for brilliance. Where you find brilliance (good ideas from librarians, or volunteers, or students, or anyone) capture it and instantly incorporate it into the training. The national digital network for people running libraries should be the national digital platform for storytelling. Where the stories are successful ways of achieving the mission of libraries: community empowerment through learning.

Bottom line, I like this report, I support (like it matters) its recommendations, and I want to do whatever I can to push it forward (seriously, I’m offering my help). However, and I can’t state this strongly enough, coffee and WiFi (and toilets) do not a revitalized library make.

Coffee, Wifi and the Loo

So I said in the beginning that there was some cause for concern with the report…a path that could be disastrous. It is not in some acceptance of neoliberal ideas…whatever that is. Nothing in this document calls for selling out he core values of librarianship. Just because the authors of the report appreciate that retail stores are good at making inviting spaces, is not selling out. Likewise it is not in an acceptance of dumbing down as I have seen blogged. Just because you see knowledge as something beyond books, and richer than simply quiet reading does not mean you are dumbing things down. It means you understand that knowledge is richer than words, beyond pages, and capable of moving the soul as well as the brain.

No, the path to destruction is if the revitalization does not include a guiding philosophy. I like this report because it is in line with a powerful philosophy of learning and service (mostly). Makerspaces, e-lending, WiFi, all are powerful tools to advance a mission of community improvement through learning. However, some have seen this report as a sort of “give them what they want” prescription. We will not save libraries by becoming all the things localities need. Want to be a hub – you got it. Want to be a social space – you got it. Want to be a coffee bar – you go it. Want tax advice – you got it.Need social work, or welfare support, or travel guidance – you go it. Want to do anything and everything for whatever reason? The customer is always right…right? Except we are not talking about customers – we are talking about citizens.

Libraries are places of informal learning – no – they are places of learning and empowerment through knowledge. They are so, because we staff them, or at least oversee them, with librarians who are trained professionals. More important than the skills of librarians, though, is the set of principles and values they bring. Librarians are engaged in transformative social engagement. They seek to connect community members with ideas to help them learn, be those ideas in books, web pages or their neighbors. So while each local library can (should) look different, they are powerful because they come together in a common mission finding economies of scale and impacts.

This report, when read with this philosophy of participation and learning places the UK in a new wave of library thought. In the U.S. ALA is adopting community engagement as a key strategy. IFLA is moving towards supporting community engagement. Across the globe librarians are waking from a century long bender with collections and cataloging, to remember that these are only tools to serve the community. Important and vital tools, but tools

Please remember, you want to revitalize libraries in the UK not to have better libraries – but to have better communities. The community is the collection and needs collection development in the form of nurturing, training, and empowerment. In Chattanooga, and Pisa, and Edmonton, and Wellington librarians are focusing their considerable powers directly on the people they live and work with. These librarians no longer see their role as simply setting a table of knowledge, rather they see their role as hosting a sumptuous feast of shared expertise and experience resident in their communities.

I applaud the Independent Report, and implore the communities, librarians, and legislators to actively engage in revitalizing the UK libraries. I also applaud and implore librarians everywhere to push forward a view of librarianship beyond what and how we do to why we do it.

The Boring Patient Reviews are In

Gold starMy new book The Boring Patient has been out for about 2 months and the reviews are starting to come in. Available as a paperback, ebook, and audio book here are some highlights.

Amazon (5.0 out of 5 stars)

5.0 out of 5 stars an inspiring but realistic journey of a great man dealing with cancer

5.0 out of 5 stars Should be required reading for all

5.0 out of 5 stars The Boring Patient will allow you to do this, all while being entertaining and emotionally accessible.

5.0 out of 5 stars This book adds real and unique value to the pantheon of books, including personal stories, about dealing with life threatening illness.

5.0 out of 5 The combination of humor, criticism of the medical system, and description of an emotional cancer experience make this text multidimensional, and a quick read.

GoodReads (4.8 out of 5 stars)

5.0 out of 5 Best cancer patient narrative I’ve ever read.

LibraryThing (5.0 out of 5 stars)

5.0 out of 5 Most impressively and importantly for those of us involved in training-teaching-learning, Lankes never loses sight of the important role he plays for his readers—the role of someone who makes information meaningful to those of us receiving it through the book.

Stories and Fiction: Join the Radical Conversation

Today we start the second in our series of radical conversations, this time about the role of fiction and storytelling in knowledge creation. What is the role of narratives in the work of librarians, and what is the work of libraries in creating the stories of our communities?

How can librarians serve their communities in terms of fiction beyond a collection? Come join us, and make sure you give a listen to a conversation with the New Librarianship Collaborative and Jennifer Ilardi on lessons from Ferguson, MO.

Join the conversation via Twitter using the hashtag #NewLibFiction or at the conversation’s page:

https://davidlankes.org/?page_id=6757

Also, we’ll be pulling all of these discussions together for an event at ALA MidWinter in Chicago. Let us know if you can make it February 2, 2015.

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ILEAD USA and You

1260x240-ileadusa-banner1Right now 10 State Libraries are gearing up to offer, in my opinion, the best learning experience for in-the-field librarians: ILEAD USA. The program consists of cross-library teams, mentors, amazing instructors, and thought leaders from across the industry. Though 3 intensive residencies librarians form a cohort around projects with the sole aim to produce awesome librarians.

It is a program I feel some pride in as I was invited to be part of designing the curriculum. If you follow my blog you have seen some of my talks to ILEAD USA, but those are an itty bitty part of a much more amazing experience.

If you are in these states, and are looking for a professional development on steroids please contact your state library and see how you can participate:

These folks are also looking for awesome librarians to act as instructors in the area of technology, leadership, project planning, and community engagement.

Also, a special shout out to IMLS that has been instrumental in making this happen (with a lot of investment from the state libraries). Together this program has been creating and will continue to create a nationwide corp of librarians ready to improve lives. Please join us!

Join the Radical Conversation on Defining a Library

This week the folks behind the upcoming Radical’s Guide to New Librarianship are looking for your help in defining what a library is…from a New Librarianship point of view. As part of the Radical Conversations series, we need your help in understanding what differentiates a library from a community center, classroom, bookstore, or warehouse.

Watch the introduction:

Hear some folks struggle with the topic:

Join the conversation via Twitter using the hashtag #NewLibLibrary or at the conversation’s page:

https://davidlankes.org/?page_id=6442

Also, we’ll be pulling all of these discussions together for an event at ALA MidWinter in Chicago. Let us know if you can make it February 2, 2015.

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